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Quality of Life of People with Multiple Sclerosis

March 19, '08: Principles to Promote Quality of Life of People with Multiple Sclerosis
Category: ADDITIONAL MS Resource Sites
Posted by: stuart
Written by: Julie Stachowiak, Ph.D., of: about.com
obtained on : March 19, 2008

What Does "Human Rights" Have to Do with MS?
Usually, the term “human rights” conjures up violations and atrocities, such as prisoners being tortured or genocide taking place in a far-away country. However, human rights have a broader purpose than simply protecting people from the worst things that can happen. To put it simply, human rights are about dignity and what needs to happen (or not happen) so that each person can live with the dignity that they deserve, simply because they are human.

What does that have to do with multiple sclerosis (MS)? Plenty. We did not become less valuable as humans when our immune systems started attacking our myelin and we became less steady on our feet, or slower to find our keys. However, in order for us to live our lives to the fullest and contribute the most we can to society, sometimes we need a little help.

We may need special medical care. We may need our workplaces adapted so that we can do our jobs. We may need transportation and public buildings to be made accessible so that we can get where we need to go and function once we get there.
We are not asking for special treatment. We are asking to let us be humans and do the things that humans do. It is in this spirit that the Principles to Promote Quality of Life of People with Multiple Sclerosis were developed by the Multiple Sclerosis International Federation.

Why Were the Principles Developed?
The introduction to the Principles states: “It should always be kept in mind that the ultimate goal is a cure for MS. However, until a cure is found and can be broadly implemented, it is important to work to maintain or improve quality of life for people with MS...” In this context, the term “quality of life” is defined by the World Health Organization as:
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    Morgan Broadhead update

    Team MS supporter , Morgan Broadhead was serverly injured while qualifing at Jennings ,Fl. Morgan was flown to Salt Lake to continue with his rehap. He is working hard and we hope to see him on the road again soon. He has a long road ahead and I know that your thoughts are helping him through this.

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